{"id":2323,"date":"2013-11-03T12:48:10","date_gmt":"2013-11-03T12:48:10","guid":{"rendered":"http:\/\/circles-of-blue.winchcombe.org\/?p=2323"},"modified":"2013-11-26T11:08:57","modified_gmt":"2013-11-26T11:08:57","slug":"diabetes-improved-our-life-what-really","status":"publish","type":"post","link":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/11\/03\/diabetes-improved-our-life-what-really\/","title":{"rendered":"Diabetes has improved our life. What? Really?"},"content":{"rendered":"<div class=\"alignright entry-meta\" style=\"text-align:center;\"><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2013\/11\/diabetesjourney-300x187.png\" alt=\"diabetes journey\" width=\"300\" height=\"187\" class=\"aligncenter\" \/>My view of our diabetes journey<\/div>\n<p>A couple of weeks ago I attended a training course with Diabetes UK in London, as I&#8217;m soon to become one of their <a target=\"_blank\" href=\"http:\/\/www.diabetes.org.uk\/How_we_help\/Peer-support\/\">Peer Support<\/a> team. I&#8217;m not going to write about the training itself as for confidentiality reasons that&#8217;s between those of us on the course but there&#8217;s one part of it we did which made me (and a few others) think about life since diagnosis.<\/p>\n<h3>Your journey since diagnosis<\/h3>\n<p>Just before lunchtime arrived we were asked to search our soul to find out how we really feel about our lives with diabetes and whether it would raise any further questions, or highlight anything we needed to explore further. This seemed to be a good thing to do as unless we know and understand our own journey how can we help any of the newly diagnosed cope with the early days of their journey.<\/p>\n<h3>Urrgghh! Drawing!<\/h3>\n<p>Drawing lines on a piece of paper doesn&#8217;t come naturally to me but I felt comfortable with our diabetes journey and drew my picture of troughs (and troughs) and peaks (and peaks and peaks).<br \/>\nI started on the left of the page in the middle but soon wish I hadn&#8217;t as I ran out of room.<br \/>\nI&#8217;d finished way before everyone else and my mind wandered back to a Technical Drawing lesson at school when I proudly approached the teacher asking what to do next, the teacher took one look at my drawing and suggested that I&#8217;d finished before everyone else as I&#8217;d neglected to do it properly.<br \/>\nI checked my chart. No, we&#8217;re good, I&#8217;m happy with that.<\/p>\n<h3>Diabetes improves our life. What? Really?<\/h3>\n<p>Here&#8217;s my chart &#8211; which may not be drawn to scale whatsoever. <\/p>\n<p>Hover over the <span style=\"background-color: #FFFF99;\">yellow buttons<\/span> to see what happened at that point in time.<\/p>\n<div class=\"diabeteschartbutton\" style=\"margin-left:0px;\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='At &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/diagnosis\/&gt;diagnosis&lt;\/a&gt;, our mood dropped, trying to come to grips with coping with type 1. Thoughts of cancelling the trip to India also got us down.';\">29th Dec 2010<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='1. The &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/travel-in-india-with-diabetes\/&gt;trip to India&lt;\/a&gt; was re-instated, flights booked and we managed to cope with daily life.';\">1<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='2. Things got on top of us a bit, dealing with hypos and the emotions that went with them was hard.';\">2<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='3. Hypos and hypers and the constant ordering of prescriptions and re-stocking of the school diabetes kit filled our days and at the same time we started getting quite nervous about the &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/travel-in-india-with-diabetes\/&gt;trip to India&lt;\/a&gt;.';\">3<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='4. We arrived in India, all set for a wonderful month-long trip, but Amy had hypo after hypo, as she was injecting for meals and then deciding not to eat them. It took a few days to figure out what was going on.';\">4<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='5. Still in the trip we started adjusting things and having time on our hands made it much easier to deal with diabetes. We went from strength to strength and had a fantastic time. The feeling of achievement at the end was amazing. We\\'d done it, we\\'d really done it.';\">5<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='6. After arriving home Amy\\'s honeymoon period ended and we went on a carb counting course. This seemed to make life that little more difficult again. At the same time Amy returned to school.';\">6<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='7. I started getting involved with the diabetes online community, whilst getting to grips with carb counting and school life and we seemed in control again.';\">7<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='8. Things plateaued for a while, carb counting seemed a bit easier with the discovery of Carbs+Cals.';\">8<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='9. I started learning about all sorts of things to do with Diabetes care and got Amy the Aviva Expert meter, which instantly made life easier. Amy won a cuddly toy through the first ever child oriented #GBDOC tweet chat which made her feel good.';\">9<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='10. &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/04\/04\/getting-pump-amys-epiphany\/&gt;Amy\\'s epiphany&lt;\/a&gt; happened: she asked for an insulin pump.&lt;br \/&gt;We &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/04\/27\/jdrf-discovery-day-and-doc-tweetup\/&gt;met other type 1s&lt;\/a&gt;.&lt;br \/&gt;Amy got a &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/05\/15\/amys-jdrf-t1kids-magazine-article-about-india\/&gt;two page article published in JDRF T1Kids magazine&lt;\/a&gt;.&lt;br \/&gt;Amy\\'s carb-counting skills won her a bottle of champagne at the &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/05\/11\/the-portsmouth-sweetmeet-a-privileged-invite\/&gt;Portsmouth SweetMeet&lt;\/a&gt;';\">10<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='11. &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/06\/16\/gavs-gbr3030-challenge-day-29-to-gav-day-1-to-amy\/&gt;Amy cycled 30 miles&lt;\/a&gt; in support of &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/gavs-gbr3030-challenge\/&gt;Gav\\'s GBR30\/30 Challenge&lt;\/a&gt;, finishing with a run up the hill at St Agnes carrying Gav\\'s Olympic Torch.';\">11<\/div>\n<div class=\"diabeteschartbutton\" onmouseover=\"javascript:document.getElementById('moreInfo').innerHTML='12. On 20th June 2013 &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/06\/20\/getting-pump-the-day-has-dawned\/&gt;Amy got her Animas Vibe insulin pump&lt;\/a&gt; - it changed her life and her perception towards her diabetes&lt;br \/&gt;We also had a &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/07\/07\/alton-towers-tweetup-28th-june-2013\/&gt;trip to Alton Towers&lt;\/a&gt; with some great T1s.&lt;br \/&gt;Amy\\'s first HbA1c whilst on the pump &lt;a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/09\/06\/first-hba1c-since-pump-the-result\/&gt;dropped by 0.8%&lt;\/a&gt;';\">12<\/div>\n<div style=\"clear:both;\"><\/div>\n<p><img decoding=\"async\" src=\"http:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2013\/11\/diabetesjourney.png\" alt=\"diabetes journey chart\" width=\"450\" class=\"alignleft\" \/><\/p>\n<div id=\"moreInfo\">At <a target=_blank href=http:\/\/circles-of-blue.winchcombe.org\/index.php\/diagnosis><\/a>diagnosis, our mood dropped, trying to come to grips with coping with type 1. Thoughts of cancelling the trip to India also got us down.<\/div>\n<div style=\"clear:both;\"><\/div>\n<h3>Lunchtime chat: could this journey really be accurate?<\/h3>\n<p>Another peer supporter, Nick Guerin (who won this year&#8217;s <a target=\"_blank\" href=\"http:\/\/www.typeaware.co.uk\/#!Quality-In-Care-Peoples-Award-2013\/clnv\/1\">Quality in Care Diabetes Peoples&#8217; Award<\/a>) and I were chatting at lunchtime and talked about our own charts, which amazingly weren&#8217;t dissimilar, strange considering our journeys have been quite different. Nick&#8217;s blogged about it in his own blog <a target=\"_blank\" href=\"http:\/\/www.typeaware.co.uk\/#!Its-OK-not-to-be-OK\/clnv\/5EBBB34A-7836-4B22-A08F-C9F1946E4E11\">Type Aware<\/a>.<br \/>\nWe both quizzed our own charts&#8217; finishing positions: could it really be right that we both thought we&#8217;re in a better place now than before diagnosis. It seems crazy but actually I do believe it&#8217;s right.<br \/>\nI believe having diabetes has made Amy more determined to do well, to beat her peers in activities, to be thankful for what she has and can do. I feel I&#8217;m doing more things for others than I ever did before diagnosis too.<br \/>\nHaving said this I&#8217;d be much happier right now if diabetes would bugger off.<\/p>\n<h3>Go on, have a go yourself<\/h3>\n<p>Why not draw your own journey since diagnosis and see how you get on. You may be surprised how you actually view your journey and it may raise some questions for you to explore.<br \/>\nEveryone&#8217;s different and there&#8217;s no right answer, this is just for fun.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>My view of our diabetes journey A couple of weeks ago I attended a training course with Diabetes UK in London, as I&#8217;m soon to become one of their Peer Support team. I&#8217;m not going to write about the training itself as for confidentiality reasons that&#8217;s between those of us \u2026 <a class=\"continue-reading-link\" href=\"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2013\/11\/03\/diabetes-improved-our-life-what-really\/\"> Continue reading <span class=\"meta-nav\">&rarr; <\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[33,84,95,12,15],"class_list":["post-2323","post","type-post","status-publish","format-standard","hentry","category-peer-support","tag-diabetesuk","tag-diagnosis","tag-peer-support","tag-questions","tag-training"],"_links":{"self":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2323","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/comments?post=2323"}],"version-history":[{"count":65,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2323\/revisions"}],"predecessor-version":[{"id":2556,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2323\/revisions\/2556"}],"wp:attachment":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/media?parent=2323"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/categories?post=2323"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/tags?post=2323"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}