{"id":2684,"date":"2014-02-26T22:38:09","date_gmt":"2014-02-26T22:38:09","guid":{"rendered":"http:\/\/circles-of-blue.winchcombe.org\/?p=2684"},"modified":"2014-03-02T14:54:36","modified_gmt":"2014-03-02T14:54:36","slug":"patiently-waiting-cgm-animas-dexcom-and-kids","status":"publish","type":"post","link":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2014\/02\/26\/patiently-waiting-cgm-animas-dexcom-and-kids\/","title":{"rendered":"Patiently Waiting &#8211; CGM, Animas, Dexcom and Kids"},"content":{"rendered":"<p><img decoding=\"async\" src=\"http:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2013\/06\/pink-vibe-snigger.jpg\" alt=\"pink-vibe-snigger\" width=\"300\" class=\"alignright\" \/><br \/>\nIn May 2013 we chose Animas for Amy&#8217;s pump for many reasons, one of which was that in the future we might like to get CGM (Continuous Glucose Monitoring) and Animas&#8217;s in-built CGM display unit would make using CGM cheaper &#8211; because we wouldn&#8217;t need to purchase Dexcom&#8217;s own display unit.<\/p>\n<h3>Continuous Glucose Monitoring? What&#8217;s that then?<\/h3>\n<p>A CGM system consists of a sensor which is worn on the body and has a small wire just under the skin which constantly senses the glucose in the interstitial fluid. This sensor connects to a transmitter which sends data to the receiver &#8211; in our case this will be the Animas Vibe insulin pump &#8211; which can show the user what their glucose level is like. It&#8217;s important to know that as it checks interstitial fluid and not blood that the glucose level can be up to 15 minutes behind the actual glucose level.<br \/>\nThe Animas Vibe links up with Dexcom&#8217;s G4 system.<\/p>\n<h3>CGM, an expensive option<\/h3>\n<p>There&#8217;s no doubt about it CGM is expensive.<br \/>\nOne sensor costs between \u00a345 (Animas) and \u00a362.50 (third party resellers).<br \/>\nDoesn&#8217;t sound too bad does it, but then again it&#8217;s only guaranteed to last one week. ONE WEEK!<br \/>\nIf you used it full time, one sensor per week, plus needing two transmitters per year you&#8217;d be looking at paying over \u00a33000 and that&#8217;s using the cheapest pricing available.<br \/>\nLuckily some manage to get their sensors to last a fair bit longer than that, bringing the cost down dramatically, but then again that&#8217;s going against the advice of Dexcom so I&#8217;m not suggesting anyone does it. You don&#8217;t have to use CGM full time, you can use it for as long as a sensor lasts, then take a break before put a new one on.<\/p>\n<h3>Does anyone really need CGM?<\/h3>\n<p>It&#8217;s a good question. Many health care professionals would say no, for many reasons. They&#8217;re definitely worried about the psychological effects of yet another thing to do for diabetes and I can understand this.<br \/>\nTwenty, possibly even 10 or 5, years ago people weren&#8217;t using CGM so why do we need it now?<br \/>\nI guess the truth is that we don&#8217;t need it now: by understanding how your body reacts to glucose, insulin, stresses and exercise (etc.) some people can really do well to avoid highs and lows, but doing this takes a lot of effort.<br \/>\nSome people will have a clinical need to use CGM; Amy isn&#8217;t one of them.<br \/>\nOn the other hand CGM will tell you what&#8217;s going on with your glucose level throughout the day, alarming you when you go out of range. It tells you if you&#8217;re going up or down or not and it shows what&#8217;s been happening over the last so many hours. It effectively performs Basal Tests each and every night something which is done by many pump users or their parents.<\/p>\n<h3>Dexcom G4<\/h3>\n<p>If you&#8217;re in the UK you can purchase sensors, transmitters and the stand alone display unit for Dexcom G4 from third party resellers.<br \/>\nYou can do this if you want to use it as an adult.<br \/>\nYou can do this if you want to use it for your child, if they&#8217;re 2 years old or more.<br \/>\nYou don&#8217;t even need to get a letter from your hospital to say you or your child has Type 1 Diabetes.<\/p>\n<h3>Animas and their Dexcom G4 licence&#8230;for adults<\/h3>\n<p>Animas are licensed to sell Dexcom sensors and transmitters to adults in the UK. You don&#8217;t even have to be an Animas pump user to be able to buy sensors from them.<br \/>\nSo if you&#8217;re an adult with an Animas Vibe you can purchase Dexcom sensors\/transmitters and have CGM displayed on your pump.<\/p>\n<h3>Animas and their Dexcom G4 licence&#8230;for kids (2-18 years)<\/h3>\n<p>We were told in April 2013 that by the time Amy got her pump one month later Animas would have their licence to sell Dexcom G4 sensors\/transmitters for use by kids.<br \/>\nIt&#8217;s never arrived.<br \/>\nWe&#8217;ve been patiently waiting.<br \/>\nWe&#8217;ve been getting frustrated at the waiting game.<\/p>\n<h3>Where&#8217;s the logic?<\/h3>\n<p>In the UK anyone can buy Dexcom G4 sensors\/transmitters, whether it be from Animas or a third party reseller.<br \/>\nIn the UK an adult can buy their Dexcom G4 sensors\/transmitters direct from Animas.<br \/>\nIn the UK a parent can buy Dexcom G4 sensors\/transmitters for their child from a third party reseller.<br \/>\nIn the UK a parent CANNOT buy these same things from Animas for their child.<br \/>\nWhere&#8217;s the logic?<br \/>\nAs a computer programmer this drives me mad.<br \/>\nClearly there&#8217;s more to it that I don&#8217;t know about.<\/p>\n<h3>Finding an alternative method<\/h3>\n<p>I&#8217;ve been very keen to buy through Animas as their prices are so much lower and effectively it means you can get 11 sensors for the price of 8 bought from a third party reseller. As one sensor can last three or four weeks this means that you&#8217;d get at least two if not three months more of sensing by buying from Animas.<br \/>\nWe&#8217;d been told that our hospital would not fund the CGM (fair enough, it&#8217;s expensive and there&#8217;s no clinical need) but they would help us talk with Animas. I don&#8217;t want to go into detail about this but it&#8217;s not happened, I&#8217;ve felt very unsupported in our quest and frankly it&#8217;s really annoyed me. Nine months after originally asking for support I&#8217;ve heard they&#8217;ve sent us a letter for us to send to Animas to hopefully prove their support for Amy&#8217;s case.<br \/>\nHowever maybe it&#8217;s all too late.<\/p>\n<h3>Is that a licence I can see in the distance?<\/h3>\n<p>The diabetes online community rumour mill has been working overtime recently.<br \/>\nThere&#8217;s been talk of Animas holding a meeting\/presentation\/symposium at the Diabetes UK Professional Conference in Liverpool this week.<br \/>\nThere&#8217;s been rumours that Animas may well be announcing that they&#8217;ve got their licence to sell Dexcom G4 products for kids (aged 2-18).<br \/>\nRecently a post on a Facebook group asked if anyone had heard anything.<br \/>\nThey hadn&#8217;t.<br \/>\nIt started a lot of posting activity, with people emailing or calling their Animas rep, or their Diabetes Specialist Nurse.<br \/>\nWhilst no Animas rep would confirm or deny anything one nurse may well have let the cat of the bag.<br \/>\nIt seems quite likely that this week the announcement will be made that April will be the launch date.<br \/>\nBut we&#8217;ve been here before with rumours of licences and dates so I&#8217;ll take this &#8216;news&#8217; with a pinch of salt.<\/p>\n<p>Of course I really hope this rumour is true.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>In May 2013 we chose Animas for Amy&#8217;s pump for many reasons, one of which was that in the future we might like to get CGM (Continuous Glucose Monitoring) and Animas&#8217;s in-built CGM display unit would make using CGM cheaper &#8211; because we wouldn&#8217;t need to purchase Dexcom&#8217;s own display \u2026 <a class=\"continue-reading-link\" href=\"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2014\/02\/26\/patiently-waiting-cgm-animas-dexcom-and-kids\/\"> Continue reading <span class=\"meta-nav\">&rarr; <\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[50],"tags":[51,97,83,91],"class_list":["post-2684","post","type-post","status-publish","format-standard","hentry","category-cgm","tag-animas","tag-cgm","tag-hospital","tag-insulin-pump"],"_links":{"self":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2684","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/comments?post=2684"}],"version-history":[{"count":16,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2684\/revisions"}],"predecessor-version":[{"id":2701,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/2684\/revisions\/2701"}],"wp:attachment":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/media?parent=2684"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/categories?post=2684"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/tags?post=2684"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}