{"id":4652,"date":"2017-04-28T05:34:26","date_gmt":"2017-04-28T05:34:26","guid":{"rendered":"http:\/\/circles-of-blue.winchcombe.org\/?p=4652"},"modified":"2017-04-28T07:36:37","modified_gmt":"2017-04-28T07:36:37","slug":"tadtalk2017-nightscout-and-that-blooming-diathlete","status":"publish","type":"post","link":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2017\/04\/28\/tadtalk2017-nightscout-and-that-blooming-diathlete\/","title":{"rendered":"#TADTalk2017, Nightscout and that blooming Diathlete"},"content":{"rendered":"<p><img loading=\"lazy\" decoding=\"async\" src=\"http:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2017\/04\/tadlogo-300x74.png\" alt=\"tadlogo\" width=\"300\" height=\"74\" class=\"alignright size-medium wp-image-4656\" srcset=\"https:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2017\/04\/tadlogo-300x74.png 300w, https:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2017\/04\/tadlogo-250x61.png 250w, https:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2017\/04\/tadlogo-150x37.png 150w, https:\/\/circles-of-blue.winchcombe.org\/wp-content\/uploads\/2017\/04\/tadlogo.png 351w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/>Either you wish the world would swallow you up or you laugh it off, as you should.<br \/>\nYep, that moment had happened again where Gav (@Diathlete) talks about running from John O&#8217;Groats to Land&#8217;s End, shows the photo of the support group including me, and then tells everyone he can run faster than I can cycle. It&#8217;s true.<br \/>\nOf course I don&#8217;t mind at all, cos Gav saved me: if he had not run 900 miles and needed a little support which I then gave for 4 days, then I would never have cycled 100 miles in 2013. Which led to finding something I love to do, cycling 2000 miles each year since, completing 100 miles\/day rides, cycling to Paris twice. Thanks Gav, that&#8217;s down to you.<\/p>\n<h3>Yawn, yawn, yep, yep, rabbit, rabbit<\/h3>\n<p>The day had started early when at 6-something-or-other a.m. I picked up Kelly (@diabeticqueen1) who was my travel companion for the day. Like Chas &#038; Dave&#8217;s famous song &#8211; Rabbit &#8211; she didn&#8217;t shut up the whole way, she was clearly as excited as half of my Twitter timeline was to be attending #TADTalk2017.<br \/>\nI didn&#8217;t mind at all, we had a lot to talk about what with various presentation collaborations, our Sugarbuddies peer support and our cycle together to Paris. I was keen to introduce her to lots of people I already knew and it made me smile when all I heard all day was &#8216;I love her\/him&#8217; as each speaker took their turn. Positivity is certainly the way forward.<\/p>\n<h3>A set of family speeches<\/h3>\n<p>Although we&#8217;d not met in real life before when Jen took to the stage it felt like I was watching a friend or member of my family up there on that stage, someone whose story I knew a fair bit but whose full story was unknown to me, a story which made me feel a little sad, a story which showed grit and a great outlook on life. The same happened when Gav floored us with his achievments, Roddy amazed us with his expeditions, Mel&#8217;s sporting achievements and finally Adrian with his story of never really speaking about Diabetes &#8211; he&#8217;s really turned that corner now.<br \/>\nEveryone so humble, so grounded, so unaware of just how bloody brilliant they are.<br \/>\nAnd they really are.<br \/>\nLoads of others have blogged about the speeches so take a look at their blogs: <a target=\"_blank\" href=\"http:\/\/elshuckle.blogspot.co.uk\/2017\/04\/talking-about-diabetes-2017.html?spref=tw\">here<\/a>, <a target=\"_blank\" href=\"https:\/\/type1bri.com\/tadtalks-2017-day\">here<\/a>, <a target=\"_blank\" href=\"http:\/\/type1adventures.blogspot.co.uk\/2017\/04\/tadtalk2017train-reflections.html\">here<\/a>, <a target=\"_blank\" href=\"http:\/\/adrianlong3.blogspot.co.uk\/2017\/04\/im-still-standing.html\">here<\/a>, <a target=\"_blank\" href=\"http:\/\/anydayt1.blogspot.co.uk\/\">here<\/a>.)<\/p>\n<h3>Three things which I thought were awesome<\/h3>\n<p>Let&#8217;s face it, the whole event was freaking awesome &#8211; hopefully Catherine, Peter and Partha know how grateful to them I am &#8211; and we are &#8211; for the event &#8211; but they were some stand-outs for me.<\/p>\n<h4>Three things which I thought were awesome &#8211; approachable people<\/h4>\n<p>Some of the people who attended not only went but made themselves approachable to the masses, and I&#8217;ll highlight Karen Addington, Chief Executive of JDRF UK. Let&#8217;s not forget that Karen herself lives with Type 1 Diabetes but it was great to see her there, and get the chance to have a good chat. I&#8217;ve noticed this before at Diabetes events, that CEOs and Directors of the charities attend and make themselves approachable. I&#8217;ll always remember being cheered on cycling up Newlands Corner hill on RideLondon 2015, only to find out later it was one of JDRF&#8217;s Directors.<br \/>\nAt TAD we could freely have a chat with not only Partha and Catherine, but Bruce Keogh, Jane Cummings and Stephen Dixon too. <\/p>\n<h4>Three things which I thought were awesome &#8211; free beer<\/h4>\n<p>Diabetes UK&#8217;s drinks event after TAD had finished was absolutely brilliant and I want to thank them for doing that, they didn&#8217;t need to, but it really extended a great thing of the day&#8230;being able to talk to each other.<br \/>\nIt gave us all another four hours or so or chat with our friends, some old, some new.<br \/>\nThanks to Michaela and Sally for organising this and for the D:UK leads for allowing it to happen.<\/p>\n<h4>Three things which I thought were awesome &#8211; helping people with Nightscout\/WeAreNotWaiting<\/h4>\n<p>I&#8217;d asked Partha and Catherine if Nightscout could have a stand at TAD, as we did the year before when we were supporting Wes, Nightscout USA&#8217;s busiest advocate.<br \/>\nWithout hesitation they agreed.<br \/>\nNormally HCPs would say no, well let&#8217;s face it they can&#8217;t officially support something which doesn&#8217;t have the backing of clinical trials, and by some is seen as hacking.<br \/>\nI understand and expect the &#8216;no&#8217;s&#8217; but it was lovely to have a &#8216;yes&#8217; and I&#8217;m pretty confident I know why they agreed: ultimately they know Nightscout\/OpenAPS\/LOOP make a lot of difference to their patients and they want the best for their patients.<br \/>\nUs Nightscouters had travelled far and wide primarily just to be at the stand, yes we wanted to hear the talks but above all us we went to help people.<br \/>\nRather than just Nightscout we opted for a #WeAreNotWaiting table and were delighted for Alasdair to join us with his OpenAPS and LOOP kit.<br \/>\nWe had 5 Nightscouters and 2 Loopers present and each of us ended up speaking to a good few people, some learned about Nightscout for the first time, some had their nerves about setting it up quashed, many decided to set it all up soon.<br \/>\nFor more info about Nightscout, either visit <a target=\"_blank\" href=\"http:\/\/nightscout.info\">nightscout.info<\/a> or join the Facebook groups: Nightscout UK; CGM in the Cloud; Nightscout for Medtronic.<br \/>\nFor more info about creating a DIY artificial pancreas either visit <a target=\"_blank\" href=\"http:\/\/www.openaps.org\">openaps.org<\/a> or join the Facebook group Looped.<br \/>\nFor more info on getting your Dexcom G4 data available on a watch or website take a look at <a target=\"_blank\" href=\"http:\/\/bit.ly\/xdripkev\">this page<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Either you wish the world would swallow you up or you laugh it off, as you should. Yep, that moment had happened again where Gav (@Diathlete) talks about running from John O&#8217;Groats to Land&#8217;s End, shows the photo of the support group including me, and then tells everyone he can \u2026 <a class=\"continue-reading-link\" href=\"https:\/\/circles-of-blue.winchcombe.org\/index.php\/2017\/04\/28\/tadtalk2017-nightscout-and-that-blooming-diathlete\/\"> Continue reading <span class=\"meta-nav\">&rarr; <\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":4656,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[17],"tags":[28,95,98],"class_list":["post-4652","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-event","tag-events","tag-peer-support","tag-wearenotwaiting"],"_links":{"self":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/4652","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/comments?post=4652"}],"version-history":[{"count":10,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/4652\/revisions"}],"predecessor-version":[{"id":4663,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/posts\/4652\/revisions\/4663"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/media\/4656"}],"wp:attachment":[{"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/media?parent=4652"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/categories?post=4652"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/circles-of-blue.winchcombe.org\/index.php\/wp-json\/wp\/v2\/tags?post=4652"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}