The out-of-the-blue email from Diabetes UK asked if Amy and I would be interested in doing an article for the Relative Values section of their Balance magazine, a smallish feature towards the back of the magazine. Weeks later both Amy and I were telling our stories to Balance’s editor Louise, …
In June I rode to Paris with a 10 mums and dads of kids with Type 1, plus 16 year old Jack (who has Type 1 himself). Finally the videos are done. It was ridiculously hot, riding in temperatures up to 43 Celsius, that made it quite hard work at …
I wrote this on a Facebook post back in 2016 but with many people adapting and sharing it I thought I’d blog it, with adaptions. Diabetes sucks.* 3242 days Amy has spent with this relentless condition, mostly always with a smile on her face, sometimes not, some days it’s fairly …
It seems like a long time ago from the World Diabetes Day 2018 post. How things have moved on during the last year. And Happy Birthday to this blog, 7 years old today! Focusing on real life. It’s been a year about real life, families, friends and fun. A year …
No I’m not referring to the wonderful set of friends within our local Hampshire/Dorset Sugarbuddies support group, but to the performance of Jade Byrne’s show Pricks. The Play. “I’ve had over 70,000 pricks… of the medical kind. This is my chance to set the record straight about type 1 diabetics …
A while ago the lovely people from Solent diabetes unit did an event for the public to find out their A1C – they used A1CNow kit. I had been aware of it for some time but the fact clinicians were using it – they probably had little other choice given …
It’s 6:30am and I’m awake now for the day, but I wasn’t woken up by any CGM remote monitoring alarms, nor clock alarms because I need to check Amy’s glucose levels, no, I’m just awake because it’s time to get ready for work. Reflecting back to two years ago when …
Last night’s clinic appointment was the quickest one ever, not that time is a measure of a successful appointment, but it felt really nice. Normally Amy has great chats and lot of time with her normal Consultant but this time she had a Doctor she’s only seen once, some time …
Two days after presenting about DIY looping at the Diabetes UK Professional conference, I had another groundbreaking experience: presenting #WeAreNotWaiting at a JDRF Discovery Day.Rolling back to January 2016, Amy, Stuart, Kate and myself presented to the board of JDRF, a wonderful team all amazed at what the WeAreNotWaiting community …
“We’re thinking of running a DIY looping Hot Topic at the professional conference” the Diabetes UK Director told me, “and we’ll ask (Dr) Emma (Wilmot) to run it”. (A Hot Topic is usually quite a short session of 15 minutes or less.) “Hi Emma, just a quick message to say …
During the Christmas break whilst configuring my new Amazon Echo to use the already existing Nightscout Alexa integration, my Developer’s mind was curious how these Alexa ‘skills’ were created. I’d need an idea though, but what? What could I do? All the skills existed. Ok, let’s forget this idea. Hours …
Back in October whilst standing in front of 200 health care professionals at the Royal College of Physicians in Edinburgh, a not-so-immaculately timed* scheduled tweet announced my latest project as I presented about it to the audience* *I was ahead in my presentation by two minutes. Damn! Earlier in 2018 …
After buying my eldest daughter an Amazon Echo for Christmas we decided to get one for the kitchen, then I remembered that it was possible to integrate Nightscout into it. Within 30 minutes of starting from scratch I had it all set up, it was good, it worked well. Being …
It’s been a year of changing pumps and a year of trying to change pumps. It’s been a year of talking about #WeAreNotWaiting and a year of trying to talk about #WeAreNotWaiting. Things are set to change quite soon. It’s also been a year when Amy started looping, which is …
Back at the end of July Amy went on a trial of the Dana RS insulin pump, a trial which was due to last four weeks, two of which we were on holiday in France. The trial was successful, Amy has asked for the pump and whilst it’s not cut-and-dry …