Welcome to our blog about life in a family trying their best to deal with type 1 diabetes and all it throws at you.
A great start to using CGM to get the bigger picture
A few weeks ago on the 18th June Amy inserted her first CGM sensor. On the 12th July she took it off.
It lasted 25 days.
Initially it was very exciting seeing how accurate Dexcom was in comparison to Amy's normal finger-stick checks, seeing those graphs, flipping between 1 hour graphs, 3 hours, 6, 12, 24.
Then it felt scary: how [more]
Posted On: 13-July-2014
Portsmouth's second SweetMeet - another privileged invite
Amy shows off the carb counting scales she won at the SweetMeetIn the middle of a busy weekend - clinic yesterday, TeamBloodGlucose cycle ride tomorrow - Amy and I had an invite to the second SweetMeet organised by the team at Portsmouth's QA hospital. For us it was another privileged invite being personally invited by Dr Partha Kar for [more]
Posted On: 5-July-2014
Diabetes UK are Making the Grade
I saw Diabetes UK's 'Hands Up for Good Diabetes Care in Schools' a while ago, after seeing a tweet from a rather proud Andy, proud of the video 10 year old Lewis starred in.
If you've not seen it take a look by playing the video below.
A great campaign
Make the Grade is yet another great campaign from Diabetes UK and I'm really [more]
Posted On: 2-July-2014
DRWF Wellness Day - 21st June 2014
I joined many other friends and local people with diabetes at the 6th Annual Diabetes Wellness Day South, held by the Diabetes Research & Wellness Foundation in Southampton. Last year's event was a good one so I had high hopes that this one would be as good; it was. The Wellness Days are whole day events which cost £5, starting at 9am [more]
Posted On: 30-June-2014
The forgotten sibling?
Emilia on her prom transport, a wonderful old London busIt's 4:58am and I'm sat here awake, unable to sleep after picking up my eldest, non-pancreatically-challenged daughter, Emilia up from her after-prom party. It's suddenly struck me how much of our time is geared up for managing Amy's diabetes, or dealing with Emilia's GCSEs and [more]
Posted On: 27-June-2014
CGM: we're live with Animas/Dexcom
On Wednesday last week, Amy fitted her own Dexcom CGM for the first time, going live with something she'd (and we'd) been looking forward too for almost a year, 363 days in fact since she got her pump on 20th June 2013.
It was back in March that Animas announced that they had got the licence to sell Dexcom kit for use by kids aged [more]
Posted On: 24-June-2014
Nightrider London awaits
Three days from now, at dawn on Sunday, I should have just finished cycling 100km around London, raising money for JDRF. I truly can't wait to do it particularly as I'm doing it as part of a team mainly consisting of my work colleagues.
We start off from Crystal Palace at 10:35pm anti-clockwise through Tower Bridge, Canary Wharf, [more]
Posted On: 5-June-2014
#DblogWeek 2014 Day 7 - My Favourite (#DblogWeek) Things
Sunday's topic: As we wrap up another Diabetes Blog Week, let’s share a few of our favourite things from the week. This can be anything from a #DBlogWeek post you loved, a fantastic new-to-you blog you found, a picture someone included in a post that spoke to you, or comment left on your blog that made you smile. Anything you liked is [more]
Posted On: 18-May-2014
#DBlogWeek2014 Day 6 - Saturday Snapshots
Saturday's topic:Back for another year, let’s show everyone what life with diabetes looks like! With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures. Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures, or leave out the [more]
Posted On: 17-May-2014
Amy's Chat Show at the National Paediatric Diabetes Team Meeting
Back in April Dr Kar (@parthaskar) from the neighbouring QA hospital asked if Amy would be up for helping him out at a conference he was going to, the National Paediatric Diabetes Team Meeting hosted by Lilly in Birmingham. I guessed she wouldn't, it's not her thing, but I asked and she said 'Yes', her thoughts of helping Partha [more]
Posted On: 17-May-2014
#DBlogWeek 2014 Day 5 - Diabetes Life Hacks
Friday's topic:Share the (non-medical) tips and tricks that help you in the day-to-day management of diabetes. Tell us everything from clothing modifications, serving size/carb counting tricks to the tried and true Dexcom-in-a-glass trick or the “secret” to turning on a Medtronic pump’s backlight when not on the home-screen. [more]
Posted On: 16-May-2014
#DBlogWeek 2014 Day 4 - Mantras and More
Thursday's topic:Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day. Or more specifically, a hard diabetes day. Is there something positive you tell yourself? Are there mantras that you fall back on to get you through? Is there something specific you do when your mood [more]
Posted On: 15-May-2014
#DBlogWeek 2014 Day 3 - What Gets Me Down
Wednesday's topic:May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope?
I'm not so sure it gets me down but it's incredibly hard [more]
Posted On: 14-May-2014
#DBlogWeek 2014 Day 2 - Poetry Tuesday: A Childhood All Gone
Tuesday's topic: This year, Diabetes Blog Week and TuDiabetes are teaming up to bring out the poet in you! Write a poem, rhyme, ballad, haiku, or any other form of poetry about diabetes.
So here's my entry, the first poem I guess I've written since my school days. Hope it's okay.
A childhood all gone: a true story of Amy's [more]
Posted On: 13-May-2014
#DBlogWeek 2014 Day 1 - Change the world
Monday's topic:Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up.
One of the (many) things that gets me fired up is the headline 'diabetes is going to bankrupt the NHS' that you see splattered in news stories occasionally. Articles appear in many online media article, [more]
Posted On: 12-May-2014
Type 1 diabetes and young people - Rt Hon George Howarth, MP
I've just finished listening to (a lot of) Rt Hon George Howarth MP's parliamentary session entitled Type 1 Diabetes and Young People. It was a breath of fresh air to listen in the public eye who 'got it', who explained everything correctly, who wanted more support for people with Type 1 Diabetes.
Here's a link to a stream of the [more]
Posted On: 30-April-2014
Diabetes Education Day with Seahawks
A while after Amy was diagnosed I started looking for support to meet up with other families in the same position as us, that's when I first heard of Seahawks, the South-East Hampshire Families Group. It didn't really occur to me to join in with something based in Portsmouth, that seemed a long way down the road - it's 30 minutes! - as [more]
Posted On: 20-March-2014
First look: Accu-chek Aviva Insight Pump
At a recent diabetes education day I got the chance to have a look at the new Roche Accu-chek Aviva Insight Pump, nicely demoed by Helen our local Roche rep.
I was very interested to see this pump especially as it came a very close second to the Animas Vibe we selected for Amy last June. You may be interested in my write-up from our [more]
Posted On: 18-March-2014
The wait is (almost) over – CGM, Animas, Dexcom and Kids
Earlier this week I blogged about waiting for Animas to get their licence to sell Dexcom G4 for use by kids and how the Diabetes Online Document (#DOC) rumour mill was suggesting an announcement would happen soon.
That announcement was rumoured to be tomorrow at a symposium held by Animas at the Diabetes UK Professional conference [more]
Posted On: 5-March-2014
Patiently Waiting - CGM, Animas, Dexcom and Kids
In May 2013 we chose Animas for Amy's pump for many reasons, one of which was that in the future we might like to get CGM (Continuous Glucose Monitoring) and Animas's in-built CGM display unit would make using CGM cheaper - because we wouldn't need to purchase Dexcom's own display unit.
Continuous Glucose Monitoring? What's that [more]
Posted On: 26-February-2014
TrialNet - an eagerly awaited result
On December 3rd last year, Emilia and I signed up for TrialNet, giving a small blood sample at the Bournemouth Diabetes and Endocrine Centre. We were quite nervous about the day and even more nervous about the result which we wouldn't find out for ages.
It could take up to three months, it took almost that.
The results arrived [more]
Posted On: 18-February-2014
Promoting Diabetes UK's #TalkToSomeone Peer Support Service
Recently I've become a Peer Support volunteer for Diabetes UK, answering a national phone line (0843 353 8600) for one evening a week as well as answering emails sent to my TalkToKev@diabetes.org.uk email address.
I joined at a time when a promotion campaign was set to start and I was asked to share my story and experience. So I [more]
Posted On: 11-February-2014
Guest blog by Victoria Ruszala - Climbing new heights and making new mistakes
Victoria and her group at the summit of Mt Kinabalu
Preface by Kev: I truly believe travel broadens your mind but it's easy to see why people with diabetes think twice. I know from our month long backpacking trip to India that everything is not plain sailing, but most issues can be overcome, or concerns minimised, with a bit of [more]
Posted On: 20-January-2014
A good year disappears, but another one's coming
At the start of 2013 I only had one New Year's resolution, which revolved around getting more proactive managing Amy's diabetes and handing over knowledge to her to let her decide where to go next. I blogged a bit about it here.
Honestly, I'm not sure whether this has been fully achieved but I do know that she and her diabetes [more]
Posted On: 31-December-2013
Open letter to Dextro Energy: 1 more tablet please
At the last Wednesday's #GBDOC tweet chat a question and my joke answer got me thinking...
...so I thought I'd write an open letter to Dextro...
Firstly can I thank you from the bottom of my heart for literally saving my 13 year old daughter's life on so many occasions. You see she [more]
Posted On: 9-December-2013
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