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Welcome to our blog about life in a family trying their best to deal with type 1 diabetes and all it throws at you.

Newly diagnosed? Perhaps this page and its leaflet is a good place to start.

 

Recent Posts

Talking Sugar Surfing with Dr Stephen Ponder

Talking Sugar Surfing with Dr Stephen PonderWhat a weekIt's been an amazing week of privileged invites and questions of 'why me?'. Firstly, along with Amy I had the opportunity to be part of Dr Partha Kar's session on transition at the National Paediatric Diabetes Team Meeting in Birmingham and yesterday I had the huge privilege of interviewing Dr Stephen Ponder on behalf of [more]

A date with the healthcare professionals at the Lilly conference

A date with the healthcare professionals at the Lilly conferenceThe stage at the National Paediatric Diabetes Team MeetingHoist by my own petardLast year Amy took part in Dr Partha Kar's Q&A session at the Lilly National Paediatric Team Meeting in Birmingham. I didn't think she'd be interested in doing it so I impressed on her how much of a privileged invite it was; how doing it would be good for [more]

Continuing Connections - Diabetes Blog Week, Day 7

 Continuing Connections - Diabetes Blog Week, Day 7 Day 7's topic is Continuing Connections: The very first inspiration for Diabetes Blog Week was to help connect our blogging community, and that continues to be the most important reason it's held every year. So let's help foster and continue those connections as we wrap up another Dblog Week. Share a link to a new blog you've [more]

Favourites and Motivations: Diabetes Blog Week, Day 6

Favourites and Motivations: Diabetes Blog Week, Day 6 Day 6's topic is 'Favourites and Motivations': If you have been blogging for a while, what is your favorite sentence or blogpost that you have ever written? Is it diabetes related or just life related? If you are a new blogger and don't have a favorite yet, tell us what motivated you to start sharing your story by writing a [more]

Being careful with your kit? Think Again - Diabetes Blog Week, Day 5

Being careful with your kit? Think Again - Diabetes Blog Week, Day 5 So I'm a little late with Day 5's blog due to spending yesterday travelling to and talking at a conference for paediatric diabetes health care professionals, giving them a parent and child's (along with Amy of course) perspective of the care we receive. For Day 5 of DBlogWeek the main topic is about the food you've eaten or your [more]

Changes - Diabetes Blog Week, Day 4

Changes - Diabetes Blog Week, Day 4 Thursday's topic is entitled 'Changes' Today let's talk about changes, in one of two ways. Either tell us what you'd most like to see change about diabetes, in any way. This can be management tools, devices, medications, people's perceptions, your own feelings – anything at all that you feel could use changing. OR reflect back [more]

Clean it out - Diabetes Blog Week, Day 3

Clean it out - Diabetes Blog Week, Day 3 Today's blog week topic is 'Clean it Out': What is in your diabetic closet that needs to be cleaned out? This can be an actual physical belonging, or it can be something you're mentally or emotionally hanging on to. Why are you keeping it and why do you need to get rid of it? But first a little music (Don't feel like you have [more]

Keep it to Yourself - Diabetes Blog Week, Day 2

Keep it to Yourself - Diabetes Blog Week, Day 2 Today's blog week topic is 'Keep it to Yourself': Many of us share lots of aspects of our diabetes lives online for the world to see. What are some of the aspects of diabetes that you choose to keep private from the internet? Or from your family and friends? Why is it important to keep it to yourself? (This is not an attempt to [more]

I Can - Diabetes Blog Week, Day 1

I Can - Diabetes Blog Week, Day 1 This week it's worldwide Diabetes Blog Week, organised by Karen Graffeo and today's topic is 'I can': In the UK, there was a diabetes blog theme of "I can...” that participants found wonderfully empowering. So lets kick things off this year by looking at the positive side of our lives with diabetes. What have you or your loved [more]

The German exchange trip - Amy nails it

The German exchange trip - Amy nails itOn Tuesday Amy, now 14, started her exchange trip with her school to another school in Germany, somewhere. As a parent I should actually know where she is but I guess I'm a bit more relaxed about this trip than I realised. This blog was meant to be just about the trip but it's turned into a congratulatory one for Amy, who's doing really [more]

#PWDC15 – The People With Diabetes Conference – The Sessions

#PWDC15 – The People With Diabetes Conference – The SessionsIn the last post about PWDC15 I wrote about how I felt about the day and how it all started; in this post I'll go into the sessions. My main focus would be anything parent or carer related, diet related and teenager related and of course if I could match that up with some cycling talk that would be great. Within a couple of seconds of [more]

#PWDC15 - The People With Diabetes Conference - The Day Starts

#PWDC15 - The People With Diabetes Conference - The Day StartsOn Saturday I had a brilliant time attending the first ever conference for people with diabetes, run by people with diabetes. Its concept was a gamble, running several simultaneous chats based on an agenda only compiled at the start of the conference, by the people attending the conference. Did the concept work then? Hell yeah! In [more]

An unsuitable hypo treatment

An unsuitable hypo treatmentOn Saturday night, after a fantastic day at the #GBDOC Conference we returned to the hotel with some snacks for the evening to accompany our hilarious game of Cards Against Humanity. Amy bolused for the carbs she was going to eat, putting on a combo bolus and all was set. Hours later we went to sleep in our cosy hotel room, with Amy [more]

PWDC15, A Diabetes Conference for PWDs by PWDs

PWDC15, A Diabetes Conference for PWDs by PWDsThe dawn is rising on one of the most eagerly awaited days in the calendars of many people with diabetes (PWDs) in the UK, those that have been a part of the #GBDOC community for many years now, as well as people involved with Team Blood Glucose, who are sponsoring the event. A little bit of history (as I see it) #GBDOC was formed [more]

Diabetes UK Make a Difference Conference 2015

Diabetes UK Make a Difference Conference 2015The Make A Difference conferences are run by Diabetes UK for people who volunteer for them and there's one for each region. On Saturday I attended my local area's one in Guildford, it was my first one, it won't be my last. I was pleased to see Angie from Southampton D:UK Branch and Helen & Stewart from Seahawks there, along with [more]

Wire free charging for your xDrip

Wire free charging for your xDripNOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   I'm slightly jealous at the moment... Andrew Abramowicz wanted to take his xDrip to the next level, so he made another one with inductive charging using the Qi wireless receiver module from Adafruit. He increased his [more]

xDrip Test Results (vs Dexcom's 505 algorithm)

xDrip Test Results (vs Dexcom's 505 algorithm)NOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   A graph from a Nightscout website showingresults from Dexcom and xDrip dataMany people have asked questions about the accuracy of xDrip's algorithm in comparison to the latest Dexcom G4 algorithm, codenamed 505. To answer [more]

Dear Valentine, I love you...but... #SpareARose

Dear Valentine, I love you...but... #SpareARoseDear Valentine, I love you. I love you because you care about people. I love you because you want to help people. I love you because you recognise the fortunate position we are in. I love you because you know we don't go without the things we need, like insulin for our youngest daughter. I love you because you have compassion for [more]

xDrip Software Installation Video - Android App, by Dietrich Lehr

xDrip Software Installation Video - Android App, by Dietrich LehrNOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   Once the software has been loaded on the Wixel (see video on previous post) you will need to install the software on your Android phone/tablet which will read the data from the xDrip device. In this excellent video [more]

xDrip Software Installation Video - Wixel, by Andrew Abramowicz

xDrip Software Installation Video - Wixel, by Andrew AbramowiczNOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   One of the key components of the xDrip device is the Wixel chip by Polollu, it's the part which reads the data from the Dexcom transmitter. To get it up and running you need to load Stephen Black's free software on it, a [more]

Dexcom, Nightscout and xDrip - how does it all work together?

Dexcom, Nightscout and xDrip - how does it all work together?NOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   My last three xDrip posts (introduction, components and building) have generated a few questions of which device, phone, cable or application goes where, so I thought I'd create a graphic of how I see it all working (well) [more]

A Dummy's Guide to Building an #xDrip - #WeAreNotWaiting

A Dummy's Guide to Building an #xDrip - #WeAreNotWaitingNOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   If you don't know what a xDrip device is take a look at this page. I was tickled by someone on Reddit who linked to yesterday's blog about the components required for a xDrip which was entitled "An "Amateur" builds a [more]

#WeAreNotWaiting thanks to #xDrip - Components Required

#WeAreNotWaiting thanks to #xDrip - Components RequiredNOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   If you don't know what a xDrip device is take a look at this page. Since the release of my first comment about xDrip on Sunday morning my Facebook and Twitter notifications have gone crazy: 'like's everywhere, comments [more]

#WeAreNotWaiting thanks to #xDrip - Introduction

#WeAreNotWaiting thanks to #xDrip - IntroductionxDrip logo on left, Nightscout logo on rightAs you can see xDrip loves Nightscout NOTE: xDrip used to be called DexDrip so you might find some references to the old name in this article.   Okay, I'll own up, I know I shouldn't be so excited about this but I am. This is a game changer, for us and many, many more. It proved [more]

Diaversary #4 - meh!

Diaversary #4 - meh!Was it really four years ago that Jane took Amy to the Doctors to find out what was wrong? Four years since the Doctor took that simple blood test and called us within minutes to tell us to go to hospital? Four years since my daughter found her childhood all gone? We all try to be quite positive about life with diabetes in general but [more]

We’ve covered the day of diagnosis from all angles: the general story, a Father’s viewpoint, a Mother’s viewpoint and more importantly the view from Amy who was 10 at the time. We hope that these posts and the other diagnosis related posts will help newly diagnosed families understand each other a bit more.

 

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