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Welcome to our blog about life in a family trying their best to deal with type 1 diabetes and all it throws at you.

Newly diagnosed? Perhaps this page and its leaflet is a good place to start.

 

Recent Posts

Dexcom, Nightscout and DexDrip - how does it all work together?

Dexcom, Nightscout and DexDrip - how does it all work together?My last three DexDrip posts (introduction, components and building) have generated a few questions of which device, phone, cable or application goes where, so I thought I'd create a graphic of how I see it all working (well) together. Scroll down for the large version of the graphic...don't try and read that one on the right [more]

A Dummy's Guide to Building a DexDrip - #WeAreNotWaiting

A Dummy's Guide to Building a DexDrip - #WeAreNotWaitingIf you don't know what a DexDrip device is take a look at this page. I was tickled by someone on Reddit who linked to yesterday's blog about the components required for a DexDrip which was entitled "An "Amateur" builds a module for DexDrip". So here it is, this amateur's guide to building a DexDrip. A baptism of fire heat Although [more]

#WeAreNotWaiting thanks to #DexDrip - Components Required

#WeAreNotWaiting thanks to #DexDrip - Components RequiredIf you don't know what a DexDrip device is take a look at this page. Since the release of my first comment about DexDrip on Sunday morning my Facebook and Twitter notifications have gone crazy: 'like's everywhere, comments everywhere, questions everywhere. At stages I've been overwhelmed with my phone buzzing with notifications ten to [more]

#WeAreNotWaiting thanks to #DexDrip - Introduction

DexDrip logo on left, Nightscout logo on rightAs you can see DexDrip loves Nightscout Okay, I'll own up, I know I shouldn't be so excited about this but I am. This is a game changer, for us and many, many more. It proved its worth within 24 hours when I saw Amy was hypo whilst sleeping (see below). Amy wouldn't have woken up and [more]

Diaversary #4 - meh!

Was it really four years ago that Jane took Amy to the Doctors to find out what was wrong? Four years since the Doctor took that simple blood test and called us within minutes to tell us to go to hospital? Four years since my daughter found her childhood all gone? We all try to be quite positive about life with diabetes in general but [more]

Helping out our future Pharmacists

A few months ago a local parent of a child with Type 1 posted a request for help from Portsmouth University's Pharmacy department for people to be interviewed by their students. It didn't sound like my cup of tea to start with but then it dawned on me: I'd get two hours to talk about life with Diabetes to people who actually wanted to [more]

Blogaversary 2 on World Diabetes Day 2014

Blogaversary 2 on World Diabetes Day 2014It's hard to believe yet another year has gone by in the Diabetes world, here's a little bit about what's been going on. But first, it's my blog's birthday; 2 years old today (well actually yesterday but let's not worry about that minor fib). Its visits have doubled since the first year's statistics: I'm pretty darn amazed with that. [more]

"Bringing up Children with Diabetes" #GBDOC Tweetchat - Questions

I've taken part in many of the weekly (Wednesday night at 9pm) #GBDOC tweet chats since they started a couple of years ago, I enjoy them and generally get a lot out of them. A couple of weeks ago I got a message from Paul (@t1hba1c) who hosts the #GBDOC tweetchats who asked whether I'd like to host a tweetchat about bring up children [more]

Freestyle Libre - hypos, hypers, hype and hope

Freestyle Libre - hypos, hypers, hype and hopeHype With Abbott's Freestyle Libre launch at the EASD conference on Monday the excitement in the diabetes online community is hotting up, with some getting their hands on the device already. (If you've not heard of Libre before perhaps read this: Abbott Freestyle Libre Flash Glucose Monitoring: no more fingerpricks?.) The full facts [more]

Abbott Freestyle Libre Flash Glucose Monitoring: no more fingerpricks?

Abbott Freestyle Libre Flash Glucose Monitoring: no more fingerpricks?The information about Abbott's Flash Glucose Monitoring seems to be getting stronger by the week with little snippets being released every now and then. In summary From what I've read and watched (and hopefully understood correctly) I take it that: - Abbott's Flash Glucose Monitoring will require a sensor to be worn for 14 [more]

A great start to using CGM to get the bigger picture

A great start to using CGM to get the bigger pictureA few weeks ago on the 18th June Amy inserted her first CGM sensor. On the 12th July she took it off. It lasted 25 days. Initially it was very exciting seeing how accurate Dexcom was in comparison to Amy's normal finger-stick checks, seeing those graphs, flipping between 1 hour graphs, 3 hours, 6, 12, 24. Then it felt scary: how [more]

Portsmouth's second SweetMeet - another privileged invite

Portsmouth's second SweetMeet - another privileged inviteAmy shows off the carb counting scales she won at the SweetMeetIn the middle of a busy weekend - clinic yesterday, TeamBloodGlucose cycle ride tomorrow - Amy and I had an invite to the second SweetMeet organised by the team at Portsmouth's QA hospital. For us it was another privileged invite being personally invited by Dr Partha Kar for [more]

Diabetes UK are Making the Grade

Diabetes UK are Making the GradeI saw Diabetes UK's 'Hands Up for Good Diabetes Care in Schools' a while ago, after seeing a tweet from a rather proud Andy, proud of the video 10 year old Lewis starred in. If you've not seen it take a look by playing the video below. A great campaign Make the Grade is yet another great campaign from Diabetes UK and I'm really [more]

DRWF Wellness Day - 21st June 2014

DRWF Wellness Day - 21st June 2014I joined many other friends and local people with diabetes at the 6th Annual Diabetes Wellness Day South, held by the Diabetes Research & Wellness Foundation in Southampton. Last year's event was a good one so I had high hopes that this one would be as good; it was. The Wellness Days are whole day events which cost £5, starting at 9am [more]

The forgotten sibling?

The forgotten sibling?Emilia on her prom transport, a wonderful old London busIt's 4:58am and I'm sat here awake, unable to sleep after picking up my eldest, non-pancreatically-challenged daughter, Emilia up from her after-prom party. It's suddenly struck me how much of our time is geared up for managing Amy's diabetes, or dealing with Emilia's GCSEs and [more]

CGM: we're live with Animas/Dexcom

CGM: we're live with Animas/DexcomOn Wednesday last week, Amy fitted her own Dexcom CGM for the first time, going live with something she'd (and we'd) been looking forward too for almost a year, 363 days in fact since she got her pump on 20th June 2013. It was back in March that Animas announced that they had got the licence to sell Dexcom kit for use by kids aged [more]

Nightrider London awaits

Nightrider London awaitsThree days from now, at dawn on Sunday, I should have just finished cycling 100km around London, raising money for JDRF. I truly can't wait to do it particularly as I'm doing it as part of a team mainly consisting of my work colleagues. We start off from Crystal Palace at 10:35pm anti-clockwise through Tower Bridge, Canary Wharf, [more]

#DblogWeek 2014 Day 7 - My Favourite (#DblogWeek) Things

#DblogWeek 2014 Day 7 - My Favourite (#DblogWeek) ThingsSunday's topic: As we wrap up another Diabetes Blog Week, let’s share a few of our favourite things from the week. This can be anything from a #DBlogWeek post you loved, a fantastic new-to-you blog you found, a picture someone included in a post that spoke to you, or comment left on your blog that made you smile. Anything you liked is [more]

#DBlogWeek2014 Day 6 - Saturday Snapshots

#DBlogWeek2014 Day 6 - Saturday SnapshotsSaturday's topic:Back for another year, let’s show everyone what life with diabetes looks like! With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures. Post as many or as few as you’d like. Feel free to blog your thoughts on or explanations of your pictures, or leave out the [more]

Amy's Chat Show at the National Paediatric Diabetes Team Meeting

Amy's Chat Show at the National Paediatric Diabetes Team MeetingBack in April Dr Kar (@parthaskar) from the neighbouring QA hospital asked if Amy would be up for helping him out at a conference he was going to, the National Paediatric Diabetes Team Meeting hosted by Lilly in Birmingham. I guessed she wouldn't, it's not her thing, but I asked and she said 'Yes', her thoughts of helping Partha [more]

#DBlogWeek 2014 Day 5 - Diabetes Life Hacks

#DBlogWeek 2014 Day 5 - Diabetes Life HacksFriday's topic:Share the (non-medical) tips and tricks that help you in the day-to-day management of diabetes. Tell us everything from clothing modifications, serving size/carb counting tricks to the tried and true Dexcom-in-a-glass trick or the “secret” to turning on a Medtronic pump’s backlight when not on the home-screen. [more]

#DBlogWeek 2014 Day 4 - Mantras and More

#DBlogWeek 2014 Day 4 - Mantras and MoreThursday's topic:Yesterday we opened up about how diabetes can bring us down. Today let’s share what gets us through a hard day. Or more specifically, a hard diabetes day. Is there something positive you tell yourself? Are there mantras that you fall back on to get you through? Is there something specific you do when your mood [more]

#DBlogWeek 2014 Day 3 - What Gets Me Down

#DBlogWeek 2014 Day 3 - What Gets Me DownWednesday's topic:May is Mental Health Month so now seems like a great time to explore the emotional side of living with, or caring for someone with, diabetes. What things can make dealing with diabetes an emotional issue for you and / or your loved one, and how do you cope? I'm not so sure it gets me down but it's incredibly hard [more]

#DBlogWeek 2014 Day 2 - Poetry Tuesday: A Childhood All Gone

#DBlogWeek 2014 Day 2 - Poetry Tuesday: A Childhood All GoneTuesday's topic: This year, Diabetes Blog Week and TuDiabetes are teaming up to bring out the poet in you! Write a poem, rhyme, ballad, haiku, or any other form of poetry about diabetes. So here's my entry, the first poem I guess I've written since my school days. Hope it's okay. A childhood all gone: a true story of Amy's [more]

#DBlogWeek 2014 Day 1 - Change the world

#DBlogWeek 2014 Day 1 - Change the worldMonday's topic:Let’s kick off Diabetes Blog Week by talking about the diabetes causes and issues that really get us fired up. One of the (many) things that gets me fired up is the headline 'diabetes is going to bankrupt the NHS' that you see splattered in news stories occasionally. Articles appear in many online media article, [more]

We’ve covered the day of diagnosis from all angles: the general story, a Father’s viewpoint, a Mother’s viewpoint and more importantly the view from Amy who was 10 at the time. We hope that these posts and the other diagnosis related posts will help newly diagnosed families understand each other a bit more.

 

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